- March 15, 2020
Our son Billy (Batbileg Khosbayar) is 3 years old. He is the most wonderful, friendly, loving little boy with an infectious smile and love for life. He is an amazing little fighter- the CP warrior. At the age of two, Billy was diagnosed with Cerebral Palsy Spastic Triplegia, a painful condition that affects Billy’s ability to stand and walk independently. Billy is in constant discomfort and pain. Our handsome, smart Billy was born with Cerebral Palsy (CP) which mainly affects his legs and right arm which causes pain and tightness due to the spasticity. He can sing, count and do so much more except walking by himself. Nevertheless, he is very determined, who works so hard everyday to get stronger, more mobile and gain some independence. Each day he has to complete physiotherapy and occupational therapy. We’ve been researching all the possible options for our little boy and found out about SDR (Selective Dorsal Rhizotomy) surgery practices at St Louis Children’s Hospital in the United States under world renowned surgeon Dr. T.S. Park’s supervision. After filing necessary documents and lodging request application to the Dr. Park’s team we have received wonderful news that Billy has been qualified and accepted to undergo the life changing surgery.
Billy was born in January 2017 full term with APGAR at 1 minute=8, at 5 minutes=9, He is a happy 3 years old boy. He lives with his father, mother and his brother. When he become 4 months old he still could not roll over and doctors told us to wait until he reaches 6 months old. At 6 months old we started suspecting something is going wrong. We have been visiting several doctors and at 9 months old Billy went under MRI. To our shock and revelation, doctors detected signs of Periventricular Leukomalacia (PVL) under MRI.
PVL impacts the white matter of the brain, mainly responsible for gross motor development. Damage to the white matter of the brain can cause cerebral palsy (CP). The cause of PVL is still uncertain, but medical researchers have surmised that lack of oxygen or lack of blood flow to the periventricular area of the brain is the primary reasons the condition develops.
Selective Dorsal Rhizotomy
Of all the surgical procedures currently performed on patients with cerebral palsy (CP), selective dorsal rhizotomy (SDR) has undergone more thorough scientific scrutiny than any other (including orthopedic surgery). Accumulated evidence and our own experience indicate that SDR is an excellent option for selected patients with spastic cerebral palsy. We believe parents and patients should inquire about SDR as a part of the management of CP before the patient undergoes orthopedic surgery.
Two groups of nerve roots leave the spinal cord and lie in the spinal canal. The ventral spinal roots send information to the muscle; the dorsal spinal roots transmit sensation from the muscle to the spinal cord. At the time of the operation, the neurosurgeon divides each of the dorsal roots into 3-5 rootlets and stimulates each rootlet electrically. By examining electromyographic (EMG) responses from muscles in the lower extremities, the surgical team identifies the rootlets that cause spasticity. The abnormal rootlets are selectively cut, leaving the normal rootlets intact. This reduces messages from the muscle, resulting in a better balance of activities of nerve cells in the spinal cord, and thus reduces spasticity.
Awesome works and enjoy
Shi H. Huang Professor of Neurosurgery, Professor of Pediatrics and Anatomy and Neurobiology